9/11 We will never forget

Take a moment today to rember all the lives lost and all the heros from this day.

Jake is sick. has been since Sat. Hes been running fever and having diareah and very cranky.

I am so tired. I need to get where I can sleep at night. Even after I get to bed I am awake for at least 2-3 hours afterwards. Not sure why I am not sleeping. I am so tired the next day you would think I would be able to sleep, but nope.

It was time

Yep it was time for a new layout

Yes as always it has taken forever for me to update. Jakes appt went the same we wnet in and the neuro wouldnt tell us anything. I am trying to get a referal to another neuro.

Lexis appt went great. She was released to eat anything. So now we are hoping she will start gaining her weight back. She is so happy that we went home and she got to eat pizza.

The first full week of school went okay. Its a pain trying to get the kids back in the routine of going to school. They went last week and ended up being out all this week cause of Hurricane Gustav. We have had some bad weather and flooding from the storm. Finally calming down some, but still no school for the whole week.

Gonna be a hectic week

My week will be busy. Tons to do this week.

Finally kids are back to school. They started last week. Ansleigh went to 5th, Taylor went to 2nd and Lexi started kindy. Ansleigh and Taylor are happy to be back with all their friends and Lexi was super excited to start kindy. This week is their first full week, they only went 3 days last week. I am hoping this week will go smooth, but I am sure it will be hectic trying to get them back into the swing of homework and studying.

Lexi also goes back to the surgeon today for her last(i think last) check up from her surgery. Hopefully she will be released to eat anything. She has done lost almost 10lbs from not being able to eat real food. She has been able to eat some pasta, but its mostly applesauce and pudding and popcicles and some tomato soup. I know she will be happy when she can eat food and cookies and chips and all her favorites.

Jake also goes back to the nuerologist tomorrow. I will be asking him to wean him off the phenobarb and see about trying something else. Also I am gonna ask him to do another EEG. We have only done one and that was back in Nov when Jake was only 3 weeks old. So I am hoping that he will do another since its been 8 months.

Tired

So I am back now. My computer screwed up for a few days, but now its back to running normally.
A few updates here.
Lexi is doing great. She is back to her oldself running and literally bouncing off the walls. She is still on a liquid diet with some pasta. She has lost almost 6lbs in 2 weeks, but I know she will probably gain that all back quickly once she starts eating normally. She goes back to the surgeon for her last follow up on Aug 25, so after that date she should be able to eat normally again. Righ now she is dancing in the middle of the floor with one of her cartoons. I think she is getting spoiled though eating all the icecream, jello and pudding she wants.

As for the other rugrats, they are all doing great. Ansleigh will be 10 on Friday and is planning a sleepover with 5 of her little friends so this should be fun to have a house of 10 and 11yo screeching little girls. Could I come to your house for the night? lol

I did forget to post that I did graduate school finally on July 17 with honors and as valedictorian. I am now officaially a medical assistant, now after the kids go back to school and Lexi is released then I can start my job search. I wonder how it will be going from being a sahm to a working mom after 10 years. It will be a change.

Lexi is home

Lexi is home from surgery. She only had to stay 1 night and came home late last night. She is doing pretty good. She is still in pain alot, but on 2 diff pain meds so staying comfortable. She is on a strict liquid diet for 2 weeks then we shall see what the dr says she can have after that. She was sick last night and puking, but so far none today so thats good. I am having a hard time trying to get her to drink anything, and she needs to so she doesnt get dehydrated. So I am watching her now for dehydration. I have bought her so many diff drinks so she can choose what she wants, hoping that will get her to drink something. I will keep you updated.

Lexis surgery

Lexis surgery is Tuesday. We need lots of prayers and good thoughts.

Finally

Finally done with all my classes at school. Now I just have to do my clinicals which i should only have about 36 hours left to do, since I have already done some of them. And then I graduate on July 17 at 7pm. Woot woot. I will be waiting till sometime in August to even try and find a job. Lexi is having her surgery on July 22 so I will have to be home with her for a few weeks. Once things are back to normal and the kids start school I will start my search.

Happy Birthday Nathan

Happy Birthday to my big boy!!!
My little man Nathan turned 3 today. Tonight we are taking him out to dinner then tomorrow is his party. Last night me and Nathan went to see Diego Live for his birthday. He really enjoyed it. I thought it was a cute show. Here are a few pics of him at Deigo.

Happy Birthday big boy!!!

Lexi surgery

So Lexi went back to the surgeon on Tuesday. She will have one of 2 different surgeries. She will either have a Pharyngeal flap or a pharyngealplasty. They will scope her right before surgery to see which one they will do. they were gonna scope her a few weeks before to see which one, but they decided instead of putting her under twice just to do the scope in the op before the surgery so they only put her under one time. So all this is scheduled for July 22. So give us good vibes it all goes good.

Lexi's dress rehearsal for her dance recital

Oh by the way. Lexi had her dress rehearsal for her dance recital today. Here are a few pics of the rehearsal

Been a busy few weeks. Lexi turned 5 last week. She is groing fast. We had her birthday party at the jungle gym and she had a blast. She had 15 friends show up and she made out good on gifts.
She had her 5 yr check up and weighs 36lbs. she got one shot which she did real well with. She laughed as the stuck the needle in her leg and said it tickled.

Jake went in for his 6mo check and shots. He is now 15lbs 11oz. He is in the 3rd percentile for height and 6th percentile for weight. He got 2 shots and goes back next week to get another shot.
He also went to the neuro again. I still do not like his neuro and I am finally getting a referral to another one in Shreveport and am now waiting on an appt. His seizures are pretty much under control and hes doing great in therapy.

Tomorrow is Lexi's last day of school. She has her graduation at 8:15am. Ansleigh's last day of school is Monday, she has her awards day that day. Then Taylor goes Tuesday for her awards day. I can't believe school is already over with. Now on to a summer full of kids lol

Been a while

Yeah yeah. I know I suck at keeping this blog. We of course as usual have been super busy. Ansleigh and Taylor have started softball again and we are at the ballpark 4 days a week.
The kids are all doing good. We think Jake's seizures are under control with meds now, but as they said I wont always tell if hes having them. He goes back to the neuro next week.

Last week Lexi managed to fall at walmart and split her head open. She had to be taken to the ER and instead of stitches they glued her back together lol. She's doing fine now. She says it hurts when she touches it, well duh then don't touch it.

Ok more later and I will try harder to blog everyday.